I will be completely honest with you here, I was reluctant to work with the CF community. I had been part of groups on Facebook that just complained and posted negative things and I found that it would really affect my mood and outlook.
Growing up my mum had always kept the scary/negative things at arm's length as both a way to protect herself and me. I definitely adopted this approach for most of my life until I realized how much of a positive impact I was having on families and individuals with CF when I talked about it.
I am a very optimistic person and I always will be, it's just who I choose to be. I want to help as many people as I can before my time is up! After a while of working in the health and fitness industry, I realized that whilst I want to help people as much as I can, those people need to want to help themselves. I have worked with clients who want everything handed to them on a plate, feel sorry for themselves, make excuses for not getting the results they told me they wanted so much. The truth of the matter is that some people are more driven than others. All I can do is help those who want my help and are willing to work to the best of their abilities regardless of what those may be.
I received some pretty negative comments lately about my 'approach' to CF. It was all based on me having an issue with people putting down all my hard work to 'luck'. This has always been a frustration of mine as it belittles everything I do. When I talk to the media I always try to educate them on the realities of some people with CF and how devastating this illness can be. I never ever want to underplay the seriousness of this condition. I am in a position where I have a voice and realize how important it is that I send the right message to the world. I can only talk to my reality of CF. I don't know what it's like to have a lung transplant, I don't know what it's like to have CF diabetes, I don't know what it's like to take the new drugs. Does that make my opinion any less valid than someone who has? I understand that there are some people out there who have suffered so much more than I have with CF but I have suffered in my own ways. My goal has and always will be to show what is possible with this illness. I want to help parents with children with CF to see a possible outcome of a life with CF. I want to give them hope. I want to give them what my parents would have loved to have seen when I was born.
Do the negative comments hurt? Yes! Of course, they do. But will they stop me from doing what I am doing? Hell no! I want to help educate people with CF on how they can improve their lives with CF regardless of their situation! If you want to join the biggest community of positive, encouraging and supportive CFers then sign up to the CF strength website for just £8.99 a month.